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If you give a toddler clippers…

I’m sure you have heard it said: “You never know what you’ve got until it’s gone.” Well, that was definitely how I felt approximately 16 days after my first chemo. I have always, ALWAYS complained about my hair. It’s too curly. It’s too frizzy. It doesn’t cooperate. It’s a dull brown. Why couldn’t I have Holly’s shiny, perfect hair? My mom has told me my entire life, that if I have a problem with it I can, and I quote “Take it up with God when I get to heaven.” I must have complained too many times. I am now bald.

The purpose of the chemotherapeutic drugs is to attack and kill fast-growing cancer cells. Well, it kills all fast-growing cells in the body. And can you guess what some of the fastest growing cells in the body are?

That’s right.

Hair Follicles.

Honestly, losing my hair hasn’t bothered me too badly. For me, it is proof that the chemotherapy is working. I can’t see the drugs working on the cancer inside my body but I can see my hair falling out, and that is proof enough for me that treatment is working.

Maybe it’s all of the free time on my hands, but I can’t help but compare my diminishing hair to identifying a Christian in the world today. I’m not saying that I can tell who is and who isn’t christian. Only God knows who has truly accepted Christ into their heart, but there should be outward signs of an inward change. The world should be able to identify that we are Christians.

John 13:34-35 says,

“A new commandment that I give to you, that you love one another; as I have loved you, that you also love one another. By this, all will know that you are my disciples, if you have love for one another.”

Just as hair loss is a byproduct of my chemotherapy; we should have byproducts of Christ living in us. These are characteristics that you have probably heard more than once: the fruits of the spirit. They sound simple enough, and yet we (or maybe just me) seem to fail to display these attributes daily. Love, joy, peace, patience, kindness, goodness, faithfulness, gentleness, self-control.

These traits are rare in the world that we live in. A world where we argue nastily with strangers in comment threads on social media. A world where we are in such a hurry all of the time we scream at the person driving the speed limit in front of us. A world we complain about not having the nicest house, or car, or phone when there are people across the world that would be ecstatic with a tiny portion of our material possessions.

If we can display the characteristics in our daily lives, we will stick out like a sore thumb. Just as I am a walking billboard for cancer with my very bald head, if we live in such a way displaying the fruits of the spirit, we will be a walking billboard for Christ in a dark and jaded world.

Don’t worry I was preaching to myself on that soapbox too.

Back to my hair; or lack thereof.

It is a bizarre feeling when your hair starts to fall out. It started out with my head tingling. (weird, but I could deal with it) The next few days it turned into a slightly painful tingling but still manageable. I had some options. I could pull my fairly long, curly hair out in clumps, I could cut it short, or I could shave it completely. My sister talked me into to cutting it short so that I had an idea of what it would look like when it came back in.

Exhibit A

I had my cute little pixie cut almost two weeks when one night while Jordan and I were watching tv, I had pulled and picked at my hair until there was a feline-sized ball of hair next to the couch. The painful but manageable tingling had turned into a feeling of someone yanking my hair out. It was giving me a huge headache… so I caved. It was an amazing and peculiar phenomenon; once my head was shaved the pain went away immediately.

One of my biggest fears going through this whole process is how to will affect my children. I don’t want them to see me as sick. I don’t want them to be scared or worry about their mommy. They are only two and three. Reed is a smart kid but still not quite at an age that he can grasp the whole picture. We have told him only that mommy has to take some medicine to make her better, but it will make her hair come out.

Much to my surprise, the kids haven’t been fazed at all by the Brittney Spears circa 2007 mental breakdown hairstyle. They look at me the same. They still want to cuddle with me. They do not seem the least bit concerned about my appearance. They know that I am still the same person that I was yesterday and the day before, and they trust that my love for them is the same.

If my children can trust me, a human who makes mistakes daily, so willingly, why do I have issues trusting a perfect God.

Hebrews 13:8 says “Jesus Christ is the same yesterday, today, and forever.” It doesn’t matter if my circumstances change. He still the same God.

I got a little bit ahead of myself. Let me rewind.

I decided I didn’t want to freak the kids out by walking in bald one day. We decided to let the kids be a part of my transformation. I was about to face the scariest part of my cancer journey. No, not being bald… giving my two-year-old and three-year-old a set of clippers and letting them help shave my head. I really wanted to try to make it fun. (I mean what toddler wouldn’t have fun when they are given a set of clippers and told to go to town)

The pictures that follow are not glamorous. They weren’t taken by a professional. I have no makeup on…holding my kids’ fruit snacks…in front of our bathroom. This is not staged to be Instagram perfect. This is documentation of our REAL life experience with cancer.

Jordan making the ceremonial first pass of the clippers

Ryanne’s turn!
Reed getting his turn. (Notice the bald spot on my right side)

The aftermath.

I would consider our head shaving party a success. The kids had fun!

Once we were done Ryanne even shouted it was her turn to shave HER head!

So naturally, we have locked up the clippers.

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Chemo According to Kari

Chemo #1

This post is a little different. I want to explain my thoughts on the ins and outs of chemotherapy so far, especially for people who haven’t had much experience with cancer treatment before.

As a disclaimer: I AM NOT AN EXPERT. I am 100% sure this is not everyone’s experience, and all cancers are different!

***I repeat, I by no means consider myself an expert on the subject, this is just how my treatment have gone so far.***

Sunday, April 15th, we had Robbyn and Monday April 23rd I had my first chemo. It was the first out of 8 treatments. I go every other Monday; so it’s a total of 16 weeks for chemotherapy to be completed. I call them my chemo “on week” and “off week.” Basically, I get a dose of chemo on Monday and spend the next two weeks recovering until my next dose. The first four treatments that I received we’re Adriamycin (AKA the “Red Devil” because it is literally bright red and TOXIC, it even turns your urine bright red) and Cytoxin. The second half of my chemotherapy treatment will be a drug called Taxol; which I will start next week.

(That’s right! I’m halfway through chemo as of now!)

Below is a text from my brother’s good friend and coworker. As a cancer survivor himself, he has been a wealth of knowledge and support for us during this process. He sent this text through my brother for my first day of chemo.


My knowledge of oncology was very limited before I started this journey. Nursing school really only touched on it here and there. It’s astonishing how much I have learned over the last month and a half. In my limited knowledge of cancer treatment, I assumed I would have to sit there all day receiving my infusion when in reality that is not the case. It’s mostly a lot of prep work!

When I go in for treatment they immediately get my weight and labs to make sure I am healthy enough to get the chemotherapy that day. They check to make sure my white blood cell count is high enough along with a plethora of other labs.

After the labs come back, the oncologist looks them over and comes to examine me. She sees me before every chemotherapy treatment; listens to my heart and lungs, completes a breast exam, and asks how I am doing overall. (She is absolutely fantastic in case you were wondering!)

Once she examines me, she verifies that it is ok for the pharmacist to mix my infusion. The infusion is weight-based and made for me specifically, so it can’t be mixed until they know for sure I will be receiving it that day. Once pharmacy starts preparing the infusion, my nurse gives my “premeds,” which is a cocktail of long and short-acting drugs to combat the nausea that is caused by the Red Devil. Those premeds run over 30 minutes.

Next up!

The main event: my chemo!

The Adriamycin is pushed in 3 separate syringes over 15 minutes by my nurse. The cytoxin is next and it runs on an IV pump over 30 minutes. So its a ton of set up time for a short infusion! I usually get to the cancer center at 11:00 and leave by 2:30.

All of these medications go into my port which I had surgically placed the day of my second chemotherapy treatment. They can also draw my labs out of my port so I only have to be stuck one time. They kindly gave me numbing cream to put on it before I arrive, so it doesn’t hurt.

The port is quite possibly the greatest medical innovation in my opinion!

This is my port when it is “accessed” or being used.

One of the side effects of Adriamycin is mouth sores, so to combat that, the logic is to fill your mouth with ice chips to vasoconstrict (shrink the blood vessels) in your mouth to keep the medicine from causing sores.

So, I can’t talk very well while the medication is going in. Not to mention, I look completely ridiculous.

I’m not sure if it actually works or if the staff thinks it funny to watch me try to talk with a mouthful of ice.

Also, after the completing four treatments of this, I will never be able to eat ice chips again. I associate the taste with the horrible taste of adriamycin in my mouth. For the past week, it has tasted like I have a wet dollar bill in my mouth… mmm.

Another huge side effect of Adriamycin is a drop in your white blood cell count putting the body at increased risk for infection. I get a pump that looks like an insulin pump placed on the back of my arm. It has a medication called Neulasta, that automatically injects my arm 24 hours after chemo with a drug that kicks my bone marrow into overdrive to make more white blood cells.

I have to call if my temperature is above 100.9 because it is considered a medical emergency. My oncologist said she didn’t care if it was 3 am I needed to call her immediately. If you know me, I usually have to be on my deathbed to call for a doctor’s appointment, so this would take some adjusting to.

One more significant side effect of Adriamycin and Cytoxin is hair loss, but you will have to wait for another post to hear all about that!

As you can see from the top picture, the nurse is all garbed up head to toe with protective equipment. A gown, special chemo gloves, goggles, mask, and a special bag to dispose of it in.

It’s very comforting to know that the medication going into my body is that toxic!!

In reality, I don’t care what they are putting into my body as long as it kills the cancerous tissue.

I am also supposed to drink a TON of water. The goal is to keep hydrated and flush all of the byproducts of the chemo out of your system to make you feel better.

This is easier said than done when you are already queasy!

Just a word of warning: drinking that much water especially if you have just delivered a baby a week earlier, make sure you are close to a bathroom because your bladder has NOT recovered from childbirth.

I go back to the cancer center every Friday of my chemo “on week” to get a liter of normal saline to rehydrate my body. I don’t really notice how dry I really was until Saturday morning when I feel like a new person from the extra fluid.

I start Taxol on my next visit, and this regimen will be different. The Taxol is a 3 hour infusion. So, the prep work (labs, pharmacy, and exam) will be the same but with a longer infusion time. So, I am told I should plan on being there 5 hours. I haven’t quite figured out how I am going to sit still that long. All I can say is thank goodness for Netflix and my Kindle.

I cannot complain because God has been so good through all of this and my side effects have been so minimal compared to what many others go through. One nurse even asked if she could clone me! My nausea has been manageable and my white blood cell count has remained within normal range for the first half of treatment. I think most of my fatigue is due to the newborn and 2 toddlers at home!

Chemo #2

Chemo #3


Chemo #4 HALFWAY!
(Another chemo side effect: hyperpigmentation or darkening of my skin. Notice my knuckles)

I have been a nurse for 6 years and a student nurse before that for 3 years. Having no significant health issues my entire life, I have realized that I’ve never fully understood the impact good nursing care can have.

I have taken care of many patients and many of those were cancer patients, but being on the other side of the healthcare system now has turned my world upside down. I am seeing things from the patient perspective that I have never considered before.

Until recently, I had never been in the fragile position of awaiting critical test results, being unsure of my treatment options, or have very little understanding of the treatment I would be receiving. The teaching my oncology nurse has given me has been vital and could save my life.

Feeling the nurses’ genuine compassion and having them taking the time to ask how I am really doing, has made all of the difference. Seeing these nurses care for me makes me proud to be a part of the profession, and makes me want to work harder to be a better nurse and patient advocate in the future.

”Therefore as God’s chosen people, holy and dearly loved clothe yourselves with compassion, kindness, humility, and patience.” Colossians 3:12